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E pluribus unum, one out of many – advocating for all.

Powered by Kai to Advocate for Families Now: My testimony in support of  S1138 On June 10, I joined a small group of pediatric palliative care professionals and advocates to testify before the State on behalf of providing comprehensive palliative care to ALL qualifying families in Massachusetts. I really had no idea what I was really agreeing too… Continue reading E pluribus unum, one out of many – advocating for all.

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Modern Loss | Anticipatory Grief a No Man’s Land

Thanks to the work I have been doing with Courageous Parents Network I have had many new opportunities to share our story lately.  I have presented at serval professional conferences, contributed to several articles and been involved in helping others share THIER stories, which I particularly love. This piece I wrote came out today on… Continue reading Modern Loss | Anticipatory Grief a No Man’s Land